Journal of Adolescent Health
Volume 43, Issue 1 , Pages 23-29, July 2008

Access to Care for Youth with Special Health Care Needs in the Transition to Adulthood

  • Debra S. Lotstein, M.D., M.P.H.

      Affiliations

    • Department of Pediatrics, David Geffen School of Medicine, University of California–Los Angeles, Los Angeles, California
    • University of California–Los Angeles Center for Healthier Children, Families and Communities, Los Angeles, California
    • RAND Corporation, Santa Monica, California
    • Corresponding Author InformationAddress correspondence to: Debra S. Lotstein, M.D., M.P.H., Division of Child Health Policy, Department of Pediatrics, UCLA Center for Healthier Children, Families and Communities, The David Geffen School of Medicine at UCLA, 1100 Glendon Avenue, Suite 850, Los Angeles, CA 90024.
  • ,
  • Moira Inkelas, Ph.D.

      Affiliations

    • University of California–Los Angeles Center for Healthier Children, Families and Communities, Los Angeles, California
    • Department of Health Services, School of Public Health, University of California–Los Angeles, Los Angeles, California
  • ,
  • Ron D. Hays, Ph.D.

      Affiliations

    • RAND Corporation, Santa Monica, California
    • Department of Health Services, School of Public Health, University of California–Los Angeles, Los Angeles, California
    • Department of Medicine, David Geffen School of Medicine, University of California–Los Angeles, Los Angeles, California
  • ,
  • Neal Halfon, M.D., M.P.H.

      Affiliations

    • Department of Pediatrics, David Geffen School of Medicine, University of California–Los Angeles, Los Angeles, California
    • University of California–Los Angeles Center for Healthier Children, Families and Communities, Los Angeles, California
    • Department of Health Services, School of Public Health, University of California–Los Angeles, Los Angeles, California
  • ,
  • Robert Brook, M.D., Sc.D.

      Affiliations

    • RAND Corporation, Santa Monica, California
    • Department of Health Services, School of Public Health, University of California–Los Angeles, Los Angeles, California
    • Department of Medicine, David Geffen School of Medicine, University of California–Los Angeles, Los Angeles, California
    • Robert Wood Johnson Foundation Clinical Scholars Program, University of California–Los Angeles Center for Health Sciences, Los Angeles, California

Received 21 August 2007; accepted 21 December 2007. published online 25 April 2008.

Abstract 

Purpose

To describe access to care and identify factors associated with access for low-income young adults who aged out of a public program for children with special health care needs (CSHCN).

Methods

This was a cross-sectional survey of graduates of the Title V CSHCN program in one California county. Subjects were 77 graduates (55% female) aged 21–24 years with ongoing health care needs. Measures of access to care included having the following: a regular source of care for the main health condition; all needed care since turning 21 years of age; any delayed or forgone care in the past 6 months; health insurance; and continual insurance since turning age 21. Individuals lacking any one access measure were defined as experiencing an adverse transition event.

Results

Of the subjects, 24% lacked a usual source of health care, 27% had gone without some needed health care since turning 21, and 39% had delayed needed care. Although 10% of respondents were uninsured at the time of the survey; 40% had a gap in insurance coverage since turning age 21. Overall, 65% reported at least one adverse transition event affecting access to care. Factors associated with experiencing no adverse transition event were receiving Supplemental Security Income (SSI, p = .007), having received special education services (p = .003), and having been born with the main health condition (p = .013).

Conclusions

Insurance gaps and delayed care are prevalent among these low-income young adults despite ongoing health problems. Greater transition support might improve access by linking them with a usual source of care, identifying insurance options, and encouraging regular use of care.

Keywords: Children with special health care needs, Young adults, Access to care, Transition to adulthood

 

 Sources of support: This work was supported by the Robert Wood Johnson Clinical Scholars Program.

PII: S1054-139X(08)00097-9

doi:10.1016/j.jadohealth.2007.12.013

Refers to article:

  • Youth with Special Health Care Needs: Facilitating a Healthy Transition to Young Adulthood

    M. Jane Park, Charles E. Irwin
    Journal of Adolescent Health July 2008 (Vol. 43, Issue 1, Pages 6-7)

Journal of Adolescent Health
Volume 43, Issue 1 , Pages 23-29, July 2008