Journal of Adolescent Health
Volume 39, Issue 1 , Pages 121-124 , July 2006

Transition to Adulthood in Congenital Heart Disease: Missed Adolescent Milestones

  • Maureen E. Lyon, Ph.D., A.B.P.P.

      Affiliations

    • Division of Adolescent and Young Adult Medicine, Center for Cancer and Immunology Research, Children’s National Medical Center and George Washington University School of Medicine and Health Science, Washington, DC
    • Corresponding Author InformationAddress correspondence to: Dr. Maureen E. Lyon, Burgess Clinic/Division of Adolescent Medicine, Children’s National Medical Center, 111 Michigan Avenue, NW, Washington, DC 20010-2970.
  • ,
  • Karen Kuehl, M.D.

      Affiliations

    • Department of Cardiology, Children’s National Medical Center and George Washington University School of Medicine and Health Science, Washington, DC
  • ,
  • Robert McCarter, Sc.D.

      Affiliations

    • Center for Health Services and Community Research, Children’s National Medical Center and George Washington University School of Medicine and Health Science, Washington, DC

Received 6 July 2005 ,Accepted 20 September 2005.

References 

  1. Moons P , Van Deyk K , Budts W , DeGeest S . Caliber of quality of life in adults with congenital heart disease (a plea for more conceptual and methodological rigor) . Arch Pediatr Adolesc Med . 2004;158:1062–1069
  2. Boneva RS , Botto LD , Moore CA , et al.   Mortality associated with congenital heart defects in the United States (trends and racial disparities, 1979–1997) . Circulation . 2001;103:2376–2381
  3. Van Rijen EH , Utens EM , Roos-Hesselink JW , et al.   Psychosocial functioning of the adult with congenital heart disease (a 20–33 years follow-up) . Eur Heart J . 2003;24:673–683
  4. Derogatis LR , Derogatis MD . The Psychological Adjustment to Illness Scale (Administration, Scoring & Procedures Manual—II) . Towson, MD: Clinical Psychometric Research, Inc; 1990;
  5. Van Deyk K , Moons P , Gewillig M , et al.   Educational and behavioral issues in transitioning from pediatric cardiology to adult-centered health care . Nurs Clin North Am . 2004;39:755–768
  6. Thompson RJ , Gustafson KE . Adaptation to Chronic Illness . Washington, DC: American Psychological Association; 1996;

PII: S1054-139X(05)00431-3

doi: 10.1016/j.jadohealth.2005.09.008

Journal of Adolescent Health
Volume 39, Issue 1 , Pages 121-124 , July 2006