Transition to Adulthood in Congenital Heart Disease: Missed Adolescent Milestones

Lyon, Maureen E.; Kuehl, Karen; McCarter, Robert

doi:10.1016/j.jadohealth.2005.09.008

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Volume 39, Issue 1 , Pages 121-124, July 2006

Transition to Adulthood in Congenital Heart Disease: Missed Adolescent Milestones

Maureen E. Lyon, Ph.D., A.B.P.P.
- Division of Adolescent and Young Adult Medicine, Center for Cancer and Immunology Research, Children’s National Medical Center and George Washington University School of Medicine and Health Science, Washington, DC
- Address correspondence to: Dr. Maureen E. Lyon, Burgess Clinic/Division of Adolescent Medicine, Children’s National Medical Center, 111 Michigan Avenue, NW, Washington, DC 20010-2970.
Karen Kuehl, M.D.
- Department of Cardiology, Children’s National Medical Center and George Washington University School of Medicine and Health Science, Washington, DC
Robert McCarter, Sc.D.
- Center for Health Services and Community Research, Children’s National Medical Center and George Washington University School of Medicine and Health Science, Washington, DC

Received 6 July 2005; accepted 20 September 2005.

Abstract

Purpose

To determine whether adults with congenital heart disease (CHD) are better adjusted than adults with acquired heart disease (AHD).

Methods

Twenty-five adults with CHD completed the Patient Adjustment to Illness Self Report (PAIS-SR).

Results

CHD patients had good adjustment for Heath Care Orientation and Family Relations, but poorer adjustment for Vocational, Social and Domestic Environment, Sexual Relations, and Psychological Distress.