Journal of Adolescent Health
Volume 35, Issue 6 , Pages 529.e1-529.e6 , December 2004

What do adolescents want? An exploratory study regarding end-of-life decision-making

  • Maureen E. Lyon, Ph.D.

      Affiliations

    • Division of Adolescent and Young Adult Medicine, Children’s National Medical Center, Washington, DC, USA
    • Corresponding Author InformationAddress correspondence to: Dr. Maureen Lyon, Adolescent Medicine, Children’s National Medical Center, 111 Michigan Avenue NW, Washington, DC 20010 USA
    • ,
  • Mary Ann McCabe, Ph.D.

      Affiliations

    • Department of Hematology/Oncology, Children’s National Medical Center, Washington, DC, USA
    • ,
  • Kantilal M. Patel, Ph.D.

      Affiliations

    • CRI-Research Center VI, Children’s National Medical Center, Washington, DC, USA
    • ,
  • Lawrence J. D’angelo, M.D., M.P.H.

      Affiliations

    • Division of Adolescent and Young Adult Medicine, Children’s National Medical Center, Washington, DC, USA

,Accepted 4 February 2004.

References 

  1. In:  Field MJ,  Behrman RE editor. When Children Die (Improving Palliative and End-of-Life Care for Children and their Families). Washington, DC: National Academy Press; 2002;
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  4. Children’s National Medical Center, Policy No. CH PC CO:10; April 19, 1994
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  9. McCabe MA. Involving children and adolescents in medical decision-making (Developmental and clinical considerations). J Pediatr Psychol. 1996;21:505–516
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  19. Price DM. Hard decisions in hard times (Making ethical choices during prolonged illness). In:  Doyka KJ editors. Living with Grief When Illness is Prolonged. Bristol, PA: Taylor & Francis Publishers; 1997;p. 51–66
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  21. Bradlyn AS, Varni JW, Hinds PS. Assessing health-related quality in end-of-life care for children and adolescents. In:  Field MJ,  Behrman RE editor. When Children Die (Improving Palliative and End-of-Life Care for Children and their Families). Washington, DC: National Academy Press; 2002;p. C-18
  22. Morse JM. Researching illness and injury (Methodological considerations). (Keynote address from the fifth annual qualitative heath research conference) Qual Health Res. 2000;10:538–546
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  26. Lockhart LK, Ditto PH, Danks JH, et al.  The stability of older adults’ judgments of fates better and worse than death. Death Stud. 2001;25:299–317
  27. Tierney WM, Dester PR, Gramelspacher GP, et al.  The effect of discussions about advance directives on patients’ satisfaction with primary care. J Gen Intern Med. 2001;16:32–40

PII: S1054-139X(04)00074-6

doi: 10.1016/j.jadohealth.2004.02.009

Journal of Adolescent Health
Volume 35, Issue 6 , Pages 529.e1-529.e6 , December 2004

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